yes I know today is not Sunday!!

modem died Sunday-dad did not realize so when we went to power up-no Internet so Sunday's word was DISAPPOINTMENT! though Korey's word was HAPPINESS! if you could have seen his smile when we walked in the house-it could have lit the whole world up! he was so happy to see us, especially Ki! we had to wait until yesterday afternoon for a new modem from Embar and when we set everything all up-a storm comes along and knocks out the electricity!! so yesterday's word was FRUSTRATION!

will be back-storm is brewing and that lightning is oh so bright!!

today-THERE IS NO WORD-

Ki and I are at a conference so we have stepped away from our immediate world and life with autism-when we return home we will check with Dad and determine what word or words described how life was without us! so check back Sunday and we will relieve your anxiousness!! till then-enjoy each and every moment -they will not happen again exactly the same!

yesterday, all my troubles were...

right in front of me!! Word for Thursday was ACCOMPLISHMENT!! each one of us did to completion that which was on our various lists!! Korey especially did well-he finally quieted down in Walmart and collected those items on our shopping list! Ki worked in the library even though it was "my ticked off day" that is an exact Ki quote-she was really not in the mood to venture out of her room! I completed everything that was necessary for leaving tda for the PTA leadership conference in Palm Harbor! Kenny did those things he usually does and was so happy i once again did the cooking for supper-he is the best chef-but in all fairness i should share cooking responsibilities!! so a positive day was had by all! we were all smiles! therefore my troubles-or so I thought-amounted to zip-by remaining upbeat-the world was good for us...

Wednesday-weather-wilting...

good words but our word for today is WORDS. yes that is all we heard from Korey tda when he arrived home from school, yet he had a quieter day in school tda-he was noisy, yelling. yesterday for awhile and then settled down. not tda at home-everything bothered him-he was weepy tonight and whiny-and we couldn't figure out what the matter was or the problem or how he felt inside-we tried pictures and words and expressions-he was so frustrated and so we just kept going trying to find the word or words to help the situation. the communication part of autism is to us the most difficult area-the behaviors are really just a reaction to the inability to communicate-so we try to use all kinds of ways to communicate-most importantly we speak with Korey, we don't talk down to him, again it does back to the fact-Korey is a 15yr teenager FIRST, the autism is just part of him it is not who he is and that makes all the difference especially to Korey. surround your family in words, pictures, letters all and any-and see your child first not the disability...

yesterday-wow-I missed yesterday??!!

guess that was the word for yesterday-FORGETFULNESS! the alarm was late-no dogs were barking, Korey was comfy on the sofa-we all forgot we have school again-I forgot to write in Korey's log, forgot to send a snack, fell back to bed and forgot to feed breakfast to the dogs, forgot to get Ki up for some TV show, remembered I forgot to watch "The Closer" Monday night!! it certainly was a day of forgets! Korey forgot to take his backpack off when he got home-I ALMOST forgot to go to the bank! I forgot to return my library books-forgot to send off an email to the high school about orientation camp starting the 23rd!! aahhh, let me start over for today!

finally for Korey

school is back in session and so today's word is simply HAPPY! his teacher wrote, as we keep a running communication book, he was so happy and excited to be back...and the smile on his face when he came home was priceless and today's word chant was "school"! I am off to sleep as it is now the end of this day and the bus will come soon enough tomorrow! see ya...

Patience is definitely the

CORRECT word for today as i am being bombarded with a chant from Korey consisting of "mac and cheese, pew, pass gas and mac and cheese" in an uninterrupted stream of continuance!! oh, and as an aside, Ki is complaining that her nails are waiting to be filed and this exact quote " don't you have any time for your children, you can blog later" as if I really have any time for myself on any particular day-mind you I am not complaining-i LOVE my kids and would give my life for them they just seem to need me or my attention all at the same time! lol ok-i am of to file nails-hopefully not with a mac and cheese utensil and hopefully the air has cleared some from the gas that Korey just had to let escape!! maybe later...

ok-today is Sunday and lets go with...

PATIENCE! of which i need oodles of and it is just about noon time here! i have been up since 4a after finally hitting the pillow at 1a-Korey decided he wanted ice cream and chocolate at that and we went back and forth for over an hour until he finally realized i was not giving in as choc ice cream gives him an awfully sick stomach. so then he proceeded to open every kitchen closet looking for the non existent candy which he just had to have wrong-there was and is no more so finally about 7:45a he snoozed off on the sofa-and of course i had to get ready then for Sunday School-thank goodness i had prepared my lesson last night during our noisy time! lol i was then and am now extremely tired and when i get to church -i have 2 new guys and 1 returning young man so I took a deep breathe and prayed Kenny knew Kor was home with him as they were both sleeping at my departure! yes lots of patience was necessary to get through the morning and even now Korey is yelling and screaming for mac and cheese! i wonder if the neighbors think he is being beat when he really yells his lungs and brains out! WHEN WE VENTURE OUT I JUST BRAVELY SMILE AND PATIENTLY ESCORT HIM TO THE TRUCK!! will be back i am being dragged into the kitchen for oh so needed mac and cheese...

oh no missed yesterday

so I will be brief! yesterdays word in this home was QUIET!!!! we seemed to be very very noisy, dont know if that is because we had 4 tvs on with live earth or Korey was just in his mood-everything was funny, laugh, or G*d damn it (which he learned quite fast from Dad) so with the music, his screams and occasion use of words, the day was ear shattering-so i was in the mood for Quiet or for everyone to be quiet!! i guess you get what i mean!

today's word is....

there are so many words we use or connect with in the world of autism! we are cooperative, collaborative, advocates, teachers, adversaries (though that is a word and description that should be worked on to erase!) mentors, you get the picture!! then we need the ability to write effective letters or other forms of communication. and those are just ways of dealing with outsiders and not even the person with the disability!! in teaching our kids, well-let me refine that to in teaching my kid as everyone approaches their child differently as we are all individual, I need to have his attention, each action needs to be acted out and then hand over hand go through that which is being taught-even now at 15 Korey seems not to have all the nuances of a hug down pat-we still get confused between a hug and a kiss-he offers his head for a kiss and his lips for a hug-but we are getting there!! there is no straight line down which we travel-we zigzag and reach hills and valleys and sometimes the mountains are so huge we never think we will get to the other side-we do-sometimes long and hard the road is and sometimes we actually get there after a vigorous run!! the best is that we get it accomplished! yeh!